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CNN Julianna Snow, the 5-year-old girl who sparked an international conversation about wrenchingly difficult decisions for terminally ill children, died Tuesday.

A tea party to say goodbye. More Videos Heaven over hospital: A tea party to say goodbye Chat diw us in Facebook Messenger.

Find out what's happening in the world as it unfolds. Story highlights Julianna Snow died Tuesday at age 5 after battling a neurodegenerative illness Her decision to forgo care at a hospital sparked conversations about care girl chooses to die terminally ill children.

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Read the series. Michelle Moon, wrote on a blog devoted to her daughter.

I feel like the luckiest mom in the world, for God somehow entrusted me with this glorious child, and we got almost six years. Julianna was born with an incurable neuromuscular disease.

CNN's story about her last girl chooses to die documented how Moon and her husband, Steve Snow, consulted with their daughter about whether she would want to go to the hospital if she were to have a potentially fatal complication. The other choice was to forgo care and go to heaven.

Girl chooses to die

Julianna chose heaven, and her parents, in consultation with Julianna's doctors, abided by her decision. That decision -- heaven over hospital -- started a conversation about what kind of care a child with a potentially deadly disease should receive, girl chooses to die whether the child herself should be consulted in the decision making.

When she was 2 years old, Julianna was diagnosed with Charcot-Marie-Tooth disease, a neurodegenerative illness.

By the time she was 4, she'd lost the use of her arms and legs. Her swallowing muscles were so weak, she had dke be fed through a tube in her stomach.

Her breathing muscles suffered too, and she was in and out of Doernbecher Girl chooses to die Hospital in Portland, Oregon.

The Snow family: That's why her parents consulted Julianna, then only 4 years old, when doctors at Doernbecher told them they would have girl chooses to die make some very difficult medical decisions. The doctors explained to Moon, a neurologist, and Snow, an Air Force fighter pilot, that they should consider dating site username creator they wanted to do the next time an infection made it difficult for their daughter to breathe.

Did they want to bring her diee to the hospital?

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The doctors said there was a reasonable chance Julianna would die there after being subjected to painful procedures. Even if she lived, they said, it would probably be fie a short time, and she'd probably be sedated, unable to think and talk.

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Early last year, Moon asked Julianna what she wanted to do and wrote about the conversation on her blog. Julianna, if you get sick again, do you want to go to the hospital again or stay home?

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Even if that means that you will go to heaven if you choses home? And you know that mommy and daddy won't come with you right away?

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You'll go by yourself. And if you go to the hospital, it may help you get better and let you come home again and spend more time with us.

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I need to make sure that you understand. Hospital may let you have more time with mommy and daddy.

I know you don't like it when I. It's just that I will miss you so. That's OK. God will take care of me.

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He's in my heart. Julianna celebrated her fifth birthday in a tiara and princess dress. During that time, she loved to wear princess dresses, make up elaborate stories and girl chooses to die, do arts and crafts projects with hospice choozes, and have her toenails painted. She died at home, in her princess room and in my arms.

I don't know that she would have wanted it any other way. Julianna's story touched millions of people.

dating online free australia After CNN's story, People magazine wrote a multipart series about yo, and the Korean Broadcasting System -- Moon is Korean -- traveled to her home in Chooes state to do a Christmas Day documentary about her and her family.

Most readers and viewers voiced support for the family's decision, although some people with neuromuscular disabilities disapproved and started a Facebook campaign girl chooses to die "Dear Julianna.

In her blog, Moon wrote that she wants the world to remember Julianna as the "bright light" who "loved love and 'everyone except the bad guys.

She took us to a beautiful place without limits," she added. In the end, Julianna got her wish to die without medical interventions. She was hcooses brave -- and I hated that she had to be so brave," Moon wrote.